Camryn from Edmonton asks: I’m 25 years old and seeking treatment/diagnosis for Ehlers Danlos Syndrome, or hypermobility spectrum disorder, is a Rheumatologist the way to go or should I see a different kind of specialist? It’s hard to find doctors in Canada who are familiar with this disorder, and it’s been disheartening trying to get help. Thanks!

This is a great question.  Rheumatologists can be helpful to diagnose and suggest management strategies for hypermobility syndrome.  Hypermobility syndromes are conditions which allow for extra range of motion of joints, often due to ligament laxity, but also increase risk for microinjury and pain.  Rheumatologists do not provide treat hypermobility themselves, but rather suggest working with a physiotherapist to increase tendon/muscle strength around joints to decrease the extra range of motion.  Most rheumatologists in Alberta do not diagnose or treat Ehlers Danlos Syndrome.

Posted: July 16, 2024

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